|Thanks to my husband Mark Jephcott who drew DisABLEd Positive Parent logo|
|My silly hand.|
|If I wore all of these every day like am supposed to, I would be rendered completely useless! Here is just a few that sit in my drug drawer!|
Finally I am a disabled parent and I love it, it is better than the day I got my degree, better than the day I experienced walking after years of being wheelchair bound aged 16, as good as the day I got married to my husband who also has youth arthritis but his is called Psoriatic arthritis.
Our son is healthy, touch wood, he is not walking yet but can say nearly every word I present him with, he can count up to ten and he understands concepts such as let's put this car in a box.
We have struggled with the following parenting tasks:
Bathing baby - lifting baby in and out bath to his room when wet and slippy.
Playing with baby on floor.
Dressing baby as most baby clothing manufactures use dreaded poppers eg baby vests.
Putting baby in first car seat.
Taking baby out off first car seat
Throwing first car seat in skip, that nearly dislocated my husbands shoulders!
Buying new first stage car seat
Struggling to put baby this car seat
Struggling to do roll bar on first car seat
Struggling with fastening harness on first car seat
Deciding first car seat so difficult that not going out too often is for the best!
Getting Maxi Cosi Axis and finally able to go out with baby but struggling with new ness of seat for example belt straps are not easy to pull when seat is new.
Getting buggy light enough to lift
Getting buggy easy enough to fold.
Getting bottles we could hold easily in our hands.
Using a steriliser for the microwave.
Time management when a task that takes a well person one minuet takes us ten!
Us getting time to eat.
Us having energy to stay up in evening to eat.
Getting time to walk the dog
Getting time to drink a hot beverage
Having surgery and juggling parenting.
All the problems above, with the exception of the first stage car seat, have solutions that are simple, cheap or free and on the high street or the click of a mouse button! There are Facebook groups with other disabled parents who are itching to help and support. I will be posting about helpful websites, blogs and groups in the near future.
This is why I started this blog, to help give solutions to other creaky, bendy or wobbly parents questions and to let "parents to be" know that it's great news you are expecting your first baby! You can do it without the need of an entourage of carers and collection of NHS aids that will cost you a fortune!
I have had an ankle replacement recently.I had to leave my son and husband as my surgery is specialist due to tiny non developed joints and limbs but through our determination to manage I got out of hospital within three days! I am struggling at home, the husband is very busy but we keep smiling and we adore our son who has fun with sticker books on Mummy and Daddy's bed rather than on the floor!
This blog is written for all parents, a place to share experiences and ideas whether physically disabled or not and to help a future generation of parents with disabilities.
If I didnt adopt being open to suggestions then my able bodied friend who might not have been listened to when she told me about the cotton baby grows with a zip aka Zippysuits! I didn't find out about these, she did. If it hadnt been for a friend with EDS I would not have gotten to know this group of great parents with fabulous ideas. It goes to show with a little less moaning behind closed doors, getting our trials and tribulations out there to all, we can all start to help one another learn. Hopefully together in this journey a "Spikey guide to disabled parenting" can be created :)
Having a child is the best thing to happen to any one but having a child when you have a disability is such a miracle and such happiness that all the difficulties seem unimportant and you just get on with parenthood and struggle in your own way like every other parent on this planet.
|Me with son, and my "Canine Partner" Yasmin.|